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Abstract Details

Feasibility and Outcomes of Caregiver Peer Mentoring in Advanced Parkinson’s Disease
Movement Disorders
Movement Disorders Posters (7:00 AM-5:00 PM)
059
To test the feasibility of peer mentoring for caregivers of homebound individuals with advanced Parkinson’s Disease (PD) and to evaluate its effects on anxiety, depression, and caregiver strain
Homebound, advanced PD patients require intensive caregiving leading to high caregiver strain. Caregiver strain increases institutionalization risk and, in turn, excess morbidity and mortality. Studies in Alzheimer’s disease, cancer, and stroke have improved caregiver strain via peer mentoring interventions; we sought to pilot this model in advanced PD.
Mentors were experienced caregivers, actively or previously caring for a loved one with advanced PD or parkinsonism. Mentees were caregivers enrolled in an ongoing study of interdisciplinary home visits for advanced PD (NCT 03189459); their characteristics and comorbidities are reported separately. Caregivers received 16 weeks of peer mentoring involving weekly calls to discuss PD management topics, strategies, and challenges. Feasibility assessments: enrollment, call frequency and duration, and satisfaction. Primary outcomes: anxiety and depression (Hospital Anxiety and Depression Scale). Secondary outcomes: caregiver strain (Multidimensional Caregiver Strain Index), and self-efficacy.

We trained 34 mentors. 51 of 61 eligible caregivers enrolled; 3 mentees and mentors each withdrew (83.7% enrollment, 88.2% retention). Mentees were 78.5% female, mean age of 67.2 years; mentors were 58.8% female, mean of 63.6 years. Dyads had a median of 11 calls of 30 minutes’ duration (interquartile range 20-45), mean satisfaction was 91/100. We found no significant pre-post changes in mean anxiety (6.8 vs. 6.1, p = 0.09), depression (5.2 vs. 4.7, p = 0.2), caregiver strain (22.8 vs. 22.9, p = 0.9), or self-efficacy (36.5 vs. 35.6, p = 0.5).
Peer mentoring for caregivers of homebound people with advanced PD was feasible and met with high satisfaction. Although we found no significant pre-post differences after 16 weeks, only large effect sizes would have been significant in this underpowered short pilot. 
Authors/Disclosures
Jori Fleisher, MD, MSCE, FÂ鶹´«Ã½Ó³»­ (Rush University Parkinson's and Movement Disorders Program)
PRESENTER 		The institution of Dr. Fleisher has received research support from Parkinson's Foundation. The institution of Dr. Fleisher has received research support from NIH/NINDS. The institution of Dr. Fleisher has received research support from NIH/NINDS. The institution of Dr. Fleisher has received research support from NIA/NINDS. The institution of Dr. Fleisher has received research support from NIA/NINDS. Dr. Fleisher has received publishing royalties from a publication relating to health care. Dr. Fleisher has received personal compensation in the range of $0-$499 for serving as a Speaker with Parkinson's Foundation. Dr. Fleisher has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Lewy Body Dementia Association. Dr. Fleisher has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Davis Phinney Foundation. Dr. Fleisher has a non-compensated relationship as a Editorial Board Member with Â鶹´«Ã½Ó³»­ Brain & Life Magazine that is relevant to Â鶹´«Ã½Ó³»­ interests or activities.
No disclosure on file
No disclosure on file
No disclosure on file
No disclosure on file
No disclosure on file
No disclosure on file
Jayne R. Wilkinson, MD, MSCE (Philadelphia PADRECC / University of Pennsylvania) Dr. Wilkinson has nothing to disclose.
Bichun Ouyang Bichum Ouyang has nothing to disclose.
Deborah H. Hall, MD, PhD, FÂ鶹´«Ã½Ó³»­ (Rush University) Dr. Hall has received personal compensation in the range of $10,000-$49,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Â鶹´«Ã½Ó³»­. Dr. Hall has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Elsevier - Parkinsonism and Related Disorders. Dr. Hall has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Annals of Neurology. The institution of Dr. Hall has received research support from Parkinson's Foundation. The institution of Dr. Hall has received research support from CHDI. The institution of Dr. Hall has received research support from Uniqure. The institution of Dr. Hall has received research support from NIH.
Joshua Chodosh, MD (NYU Langone Health) The institution of Dr. Chodosh has received research support from NIH-NIA. The institution of Dr. Chodosh has received research support from NIH-NINR.