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Abstract Details

Chronic Comorbidities of Caregivers of Homebound Individuals with Advanced Parkinson’s Disease
Movement Disorders
Movement Disorders Posters (7:00 AM-5:00 PM)
178
To describe the comorbidity burden of family caregivers of homebound individuals with advanced Parkinson’s Disease (PD).
People with advanced Parkinson’s Disease (PD) may become homebound and separated from usual care, requiring intensive caregiving at home. Caregiver strain is associated with adverse health outcomes for those with PD and for their caregivers. PD caregivers aged 18-64, themselves, incur significantly higher medical costs compared with matched controls, but little is known about such caregivers as PD progresses and those caregivers age.
Caregiver surveys assessing comorbidity characteristics were nested within a larger study of interdisciplinary hybrid in-home/telehealth visits to homebound patients with advanced PD and their caregivers (NCT 03189459). The assessments included age, sex, race, ethnicity, and education, relationship to individual with PD and duration of caregiving, and caregiver’s self-reported medical comorbidities.
Sixty-five caregivers enrolled in the study. Women accounted for 78.5% of caregivers. Caregivers had a median age of 67.2 (interquartile range (IQR) 58.0-76.3). Seventy-three percent were white, 15.4% Black, 9.2% Asian, and 3.1% declined to answer. Median duration of caregiving was 5 years (IQR 3-7). From a list of 14 possible categories of comorbidities, caregivers reported a mean of 3 comorbidities each (SD 1.9). Individual comorbidity prevalence: Hypertension – 52.3%; Back problems – 43.1%; Arthritis - 41.5%; Depression – 33.9%, Diabetes – 13.9%; Cardiovascular disease – 10.8%; Cancer – 9.2%; and 46% “other”.
Family caregivers of people with advanced, homebound PD were older and more diverse than previously described PD caregiver cohorts. They reported a high prevalence of cardiovascular, musculoskeletal, and neuropsychiatric comorbidities. Given the demands of caring for someone with advanced PD, future work is needed to replicate these findings in larger cohorts, understand health care priorities and utilization among such caregivers, and incorporate such knowledge into the design of caregiver interventions.
Authors/Disclosures
Jori Fleisher, MD, MSCE, FÂ鶹´«Ã½Ó³»­ (Rush University Parkinson's and Movement Disorders Program)
PRESENTER 		The institution of Dr. Fleisher has received research support from Parkinson's Foundation. The institution of Dr. Fleisher has received research support from NIH/NINDS. The institution of Dr. Fleisher has received research support from NIH/NINDS. The institution of Dr. Fleisher has received research support from NIA/NINDS. The institution of Dr. Fleisher has received research support from NIA/NINDS. Dr. Fleisher has received publishing royalties from a publication relating to health care. Dr. Fleisher has received personal compensation in the range of $0-$499 for serving as a Speaker with Parkinson's Foundation. Dr. Fleisher has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Lewy Body Dementia Association. Dr. Fleisher has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Davis Phinney Foundation. Dr. Fleisher has a non-compensated relationship as a Editorial Board Member with Â鶹´«Ã½Ó³»­ Brain & Life Magazine that is relevant to Â鶹´«Ã½Ó³»­ interests or activities.
No disclosure on file
No disclosure on file
No disclosure on file
No disclosure on file
No disclosure on file
No disclosure on file
Jayne R. Wilkinson, MD, MSCE (Philadelphia PADRECC / University of Pennsylvania) Dr. Wilkinson has nothing to disclose.
Bichun Ouyang Bichum Ouyang has nothing to disclose.
Deborah H. Hall, MD, PhD, FÂ鶹´«Ã½Ó³»­ (Rush University) Dr. Hall has received personal compensation in the range of $10,000-$49,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Â鶹´«Ã½Ó³»­. Dr. Hall has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Elsevier - Parkinsonism and Related Disorders. Dr. Hall has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Annals of Neurology. The institution of Dr. Hall has received research support from Parkinson's Foundation. The institution of Dr. Hall has received research support from CHDI. The institution of Dr. Hall has received research support from Uniqure. The institution of Dr. Hall has received research support from NIH.
Joshua Chodosh, MD (NYU Langone Health) The institution of Dr. Chodosh has received research support from NIH-NIA. The institution of Dr. Chodosh has received research support from NIH-NINR.