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Abstract Details

When Time is Short: Reducing delays for neurology patients seeking medical aid in dying
Pain
P12 - Poster Session 12 (12:00 PM-1:00 PM)
6-011

This quality improvement project sought to reduce delays related to medical system factors that might result in lost time or opportunities for patients seeking Medical Aid in Dying (MAID) via the neurology clinic.

In states where Medical Aid in Dying (MAID) is legal, patients with neurodegenerative disease comprise the second largest population seeking lethal prescriptions following those with cancer. Eligibility for MAID generally requires that the patient has the ability to independently request and potentially ingest the lethal medication, necessitating intact capacity, communication, and swallowing capabilities, all of which can be threatened by progressive neurologic disease. 

A defined referral process was created for the 3-appointment sequence outlined for MAID in state law.  Weekly frozen appointments were designated to help reduce wait times for these patients. All faculty neurologists received education regarding the state laws, institutional policies, and the new departmental process for MAID. Chart review was completed for patients seeking MAID in the pre- and post-intervention groups.  Neurologists completing the training were also surveyed regarding their understanding of the process and policies both prior to and after the training.

While the average time from appointment request to appointment occurrence was not significantly different between the pre- and post-intervention groups, there was a trend toward fewer nonstandard appointments (overbooks and add-ons) following the intervention. These measures also helped to formalize the MAID process within our neurology department, leading to improved administrative handling of appointments, and enhanced neurologist understanding of MAID, as demonstrated by self-reported scales.

MAID is an evolving area of practice in neurology, with many states enacting or drafting related new legislation currently.  This project provides a model of timely and efficient access to neurologists for patients seeking MAID, which is an important issue for patients with neurological disease near the end of life.
Authors/Disclosures
Lauren Treat, MD (Childrens Hospital Colorado)
PRESENTER
Dr. Treat has nothing to disclose.
Christina L. Vaughan, MD, MHS (University of Colorado, School of Medicine) Dr. Vaughan has nothing to disclose.
Benzi Kluger, MD, FÂé¶¹´«Ã½Ó³»­ (University of Rochester) Dr. Kluger has received personal compensation in the range of $0-$499 for serving as an officer or member of the Board of Directors for International Neuropalliative Care Society. Dr. Kluger has received personal compensation in the range of $0-$499 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Annals of Palliative Medicine. The institution of Dr. Kluger has received research support from NIH. The institution of Dr. Kluger has received research support from PCORI.