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Abstract Details

Using Pediatric Quality of Life (PedsQL) Survey to Guide Headache Disorder Management and Gauge Treatment: One Institution’s Ongoing Experience.
Headache
P15 - Poster Session 15 (12:00 PM-1:00 PM)
7-010
To characterize patient and caregiver’s perception of quality of life in those who suffer from headache, determine if lower scores correlate with specific treatment recommendations, and measure the effect of management on pediatric quality of life. 
Headache is a major cause of disability world-wide, and a common referral reason to pediatric neurology clinics. Treatment of patients with headache varies widely.  The PedsQL survey is a reliable instrument to asses health related quality of life in children and may serve as a valuable tool in guiding management. Lower scores translate to a poorer quality of life.
New patients presenting to a pediatric neurology clinic with a complaint of headache and their accompanying caregivers received an initial PedsQL survey.  Evaluation and treatment recommendations were provided before surveys results were known. Scores were documented in the medical record. Repeat questionnaires will be administered at their 3-month follow up visit and analyzed for impact on quality of life and efficacy of treatment.
From April-September 2019, 62 patients and their caregivers completed PedsQL surveys.  Various headache disorders were diagnosed, and chronic migraine without aura represented the largest subgroup within our population.  Total quality of life scores ranged from 33 to 100, with 75 being the mode.  Lower total scores did not appear to correlate with specific treatment recommendation. Surveys completed by caregivers had lower overall total quality of life scores compared with patient scores, reflecting caregiver’s greater perceived disability of patient’s symptoms.  
The PedsQL survey may prove to be a helpful tool for measuring patient and caregiver response to headache management. Further long-term re-evaluation and analysis of sub-scores within the survey may be beneficial to further determine disability. 
Authors/Disclosures
Thara Bala, MD (Texas Children'S Hospital)
PRESENTER 		Dr. Bala has nothing to disclose.
Irene R. Patniyot, MD (Baylor College of Medicine/TCH) No disclosure on file
No disclosure on file
Shannon M. DiCarlo, MD, FÂ鶹´«Ã½Ó³»­ Dr. DiCarlo has nothing to disclose.