Â鶹´«Ã½Ó³»­

Â鶹´«Ã½Ó³»­

Explore the latest content from across our publications
Join The Â鶹´«Ã½Ó³»­

Log In

Forgot Password?
Create New Account

Loading... please wait

Abstract Details

Perspectives on Epilepsy-Related Fears Among Adult Patients Living With Epilepsy, Caregivers, and Healthcare Professionals
Epilepsy/Clinical Neurophysiology (EEG)
P15 - Poster Session 15 (12:00 PM-1:00 PM)
12-009
To examine epilepsy-related fears of adult patients living with epilepsy, their caregivers, and healthcare professionals (HCPs).
The online, 10-part STEP Survey (Seize the Truth of Epilepsy Perceptions) was conducted by Kantar Health on behalf of SK Life Science, Inc., in 2019.
Adult patients with epilepsy (n=400), caregivers (n=201), and HCPs (n=258) completed the STEP Survey. 
Of patients (mean age=40 years/mean epilepsy duration=16 years), 61% experienced ≥1 seizure with impaired awareness in the preceding year and 58% were treated with ≥3 antiepileptic drugs (AEDs). Irrespective of time since the most recent seizure, 83% strongly agreed they live in fear of another seizure and 39% reported that epilepsy produces constant fear. Worry about having a seizure in public was very or extremely disruptive to quality of life for 47% of patients. Epilepsy-related fear negatively influenced relationships, with 18% of patients afraid of entering long-term relationships.

Potentially affecting treatment decisions, 65% of patients somewhat or strongly agreed with not changing AEDs because of fear of seizures worsening. Additionally, 52% of patients were not at all or not very likely to ask their HCP about changing medications in the next 12 months, and 55% of this group feared deterioration in seizure control if AEDs changed. In contrast, 28% reported fear of epilepsy-related surgery.

Caregivers and HCPs perceive patients’ fear. Among caregivers, 58% somewhat or strongly agreed that patients do not switch physicians because of fear of starting over and losing gains. HCPs reported patients’ increased fear with an increasing number of AEDs tried, estimating 29%, 50%, and 51% of patients feeling afraid on the first, second, and third AED, respectively.
Fear pervades living with epilepsy and is recognized by patients, caregivers, and HCPs. Knowledge of the fear provides an opportunity to provide broader care and potentially reduce the impact of fear on treatment decisions.
Authors/Disclosures
John M. Stern, MD, FÂ鶹´«Ã½Ó³»­
PRESENTER 		Dr. Stern has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for UCB Pharma. Dr. Stern has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for SK Life Science. Dr. Stern has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Neurelis. Dr. Stern has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Ceribell. Dr. Stern has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Jazz Pharma. Dr. Stern has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for LivaNova. Dr. Stern has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for Neurelis. Dr. Stern has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for LivaNova. Dr. Stern has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Sunovion. Dr. Stern has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Jazz. Dr. Stern has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for SK Life Sciences. Dr. Stern has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for MedLink Neurology. Dr. Stern has stock in DEARhealth. Dr. Stern has stock in Ceribell. Dr. Stern has received publishing royalties from a publication relating to health care. Dr. Stern has received publishing royalties from a publication relating to health care. Dr. Stern has received publishing royalties from a publication relating to health care. Dr. Stern has received publishing royalties from a publication relating to health care.
Patricia E. Penovich, MD, FÂ鶹´«Ã½Ó³»­ Dr. Penovich has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Engage therapeutics. Dr. Penovich has received personal compensation in the range of $0-$499 for serving as a Consultant for LVIS. Dr. Penovich has received personal compensation in the range of $0-$499 for serving as a Consultant for Monteris. Dr. Penovich has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for SK Therapeutics. Dr. Penovich has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Neurelis. Dr. Penovich has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Greenwich. Dr. Penovich has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for SK Biosciences. Dr. Penovich has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Neurelis. Dr. Penovich has a non-compensated relationship as a Comittee Member with American Epilepsy Society that is relevant to Â鶹´«Ã½Ó³»­ interests or activities.
Danielle A. Becker, MD Dr. Becker has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Neurelis, Inc. Dr. Becker has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Sk life Science. Dr. Becker has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Supernus Pharmaceuticals. Dr. Becker has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for Neurelis, Inc. Dr. Becker has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for Sk Life Science. Dr. Becker has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Jazz pharmaceuticals. Dr. Becker has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for UBC. Dr. Becker has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for LivaNova. Dr. Becker has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Neuropace. Dr. Becker has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Supernus Pharmaceuticals.
Lucretia Long, DNP, APRN-CNP, FAES (Ohio State University, Wexner Medical Center) Mrs. Long has received personal compensation for serving as an employee of SKLife. Mrs. Long has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Neurelis. Mrs. Long has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for SKLife. Mrs. Long has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for UCB. Mrs. Long has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Catalyst Pharmaceutical. Mrs. Long has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Liva Nova. Mrs. Long has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Neurelis. Mrs. Long has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for SK lIFE. Mrs. Long has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Liva Nova.
Nancy Santilli, RN, PNP, MN No disclosure on file
No disclosure on file